Hello My Precious Readers,
Great Gravy! My 2014 has started with a bang! Pow! Boom! I hope that your year is off to a great start and you are making everyday a fabulous one. I’m going to start with the most recent medical update and kinda work backwards, so bear with me. This will be a rather long post to boot…
I met with my surgeon in Austin this morning to discuss the procedure of inserting a port-a-cath into my chest which will allow antibiotics to be administered directly into my bloodstream. The surgery should go smoothly and he assured me that it is very routine for him. The port is the same one that is used for chemotherapy. I hope you are not familiar with those, but I’m afraid most of you have seen one at some point. We have scheduled surgery for Tuesday 1/14/14. Has a ring to it, huh? Recovery will consist of laying low for a few days to regain my strength, rest, and avoid infections.
As I left the doctor’s office, my phone rang. A woman by the name of Chevron was a patient care coordinator for home health services. She detailed the specifics of coverage, which didn’t surprise me, but…one part of our conversation infuriated me. I am not one to get mad, hardly ever, but I was seeing red. She informed me that insurance companies won’t cover more than 28 days of IV antibiotics because the treatment is considered “investigational.” Hey…I have an idea…why don’t the insurance and pharmaceutical companies “investigate” how many people have died from Lyme Disease without proper antibiotic treatment. Cool, thanks!?! The insurance companies, pharmaceutical companies, and IDSA (Infectious Disease Society of America) are in bed together. They are having a scandalous affair and refuse to lie in that proverbial bed they have collectively made, but are strategically and intentionally lying their butts off. Not only are they capitalizing on Lyme Disease, they put patients like me at the mercy of the flawed and disgraceful system.
See for yourself…bee prepared. You will bee astonished.
Chevron informed me that after 28 days of medications, I will have to pay out-of-pocket for the antibiotics. It will cost $43/per day of treatment. Treatment is expected to last between 4-12 months and I am scheduled to have 2 treatments/day, 4 days/week. Calculator, please! Man alive (barely)! I received the coverage forms via email and signed and faxed them back to the office today. Naturally, I had to include my credit card number to be automatically charged when coverage ceases…in a month. That’s Jacked Up!
But…still…as you very well know by now…I’m so excited! I’ve been dreaming of wellness my entire life. Now, I’m on the rocky road to Wellville! Who’s coming with me?
I suspect that the days that are ahead of me will present numerous challenges. I fear that I won’t be able to blog due to pain or brain fog/malfunction, so I anticipate uploading videos for awhile. Some are on You Tube, but I will load them here also.
You all know that I stay true and genuine to my mission. The mission to deliver real, in your face, eye opening information. If I have to use my story to protect and inform others…I will…I am…doing just that. Some of the videos that I’ve recorded may sadden you. These are some of the highs and lows since July 2013. Please don’t view them as discouraging, please do not ever pity me or feel sorry for me, I beg of you. Just send up prayers when I come to mind. The progression of videos convey how far prayer has brought me thus far.
This video was made in July 2013. The weight of my World was waaaaaay too much to for me to carry on this particular day. I could no longer eat, sleep, think, or function. I was Jacked Up!
This video depicts how hard it became to speak and find the right words.
Somehow, my latest draft didn't save and you all missed some of the action... Here's what ya missed!!
On surgery day, my brother, B, took me to the surgery center. I was pretty freaked out, but was maintaining a poker face because I didn’t want to worry my big bro any more than necessary. I played it off like it was old hat to me, but inside I was jacked up emotionally! Nishi, my sweet, dear and precious friend met us there and gave me a big ol’ pep talk during pre-op. The staff at Northwest Hills Surgery Center was top-notch. I loved my surgeon, anesthesiologist, nurses, et. al! They sure know how to ease a worried mind! These are the pics from the surgery, kinda out of order because the above footage shows me at home post-surgery, but you know by now to forgive me for such idiosyncrasies, huh?
I’m so ready to bee well! My excitement and attitude are not a facade. In April 2013, I didn’t have the strength to be sick any longer. I didn’t have the strength to walk or sleep. I was tapped out, jacked up, and actually for the first time in my life…I was ready to quit…lay down and die. Through the utmost, miraculous divine intervention, I was given answers…my prayers were answered when I needed them the most. When The Lord knew I needed him, not all those times that I thought I did. When I received my test results on July 3, 2013… My strength, my fight, my determination were all restored, ten-fold. I had my will to live, my will to win, and the will to stare down the face of the deadliest disease our society may ever be lied to about…until major change takes place in the right places. Mark my words, you may not have been too familiar with Lyme Disease before reading this blog….the next 12-18 months…it’s going to be a media feeding frenzy More often than not, when I tell someone new that I have Late Stage Chronic Lyme Disease…I get one of three responses:
1) What is that?
2) Isn’t that caused by a tick bite?
3) I knew someone (insert association) that was sick forever, been all over the country looking for answers, etc…and they finally learned that it was Lyme’s
Imagine the shock when I explain that I have two co-infections, Bartonella and Babesia, that are equally as fatal, and I’ve had those since I was 8 years old in 1985! What??? Who slipped through what cracks? A lot of us! Hundreds of thousands. I’m one of the lucky few to still have my life to live. Children are dying, babies are being born with it, spouses are contracting it sexually…. Its in our nation’s blood supply, undetected, of course. Yet, I’m not cynical. My wish is for full exposure, full disclosure by the CDC and all involved parties. Again, if you encounter someone with an ongoing, chronic, multi-systemic health condition, diagnosed or not, please send them my way. It is believed that 80-90% of autoimmune disorders may be caused by the Lyme bacteria. What?? That’s jacked up!
Thank you for loving mee, jacked up and all I promise I love you, too. Jacked up and all:)